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DIAGNOSIS AND TREATMENTS: LIFE WITH CROHN’S DISEASE AT 18 YEARS OLD

Laura, 18 years old, was diagnosed with Crohn’s disease in April 2018. Here she recounts her feelings about her diagnosis and the treatments she takes in her fight to live a normal life. Patient testimonial.

Hello and thank you for agreeing to speak with us. Can you tell us a little about yourself?

My name is Laura, I’m 18, I live in northern France and I just graduated. And I was diagnosed with Crohn’s disease in April 2018.

What were the initial symptoms that told you that something was wrong?

Before I got diagnosed, I had stomach aches all the time, sometimes so bad that it made me cry. I had watery stoolnausea and I was extremely tired. At first, I went to see my GP who has been seeing me since I was a little girl, then my father took me to see a gastroenterologist. Before she diagnosed me with Crohn’s disease, the doctor thought it might have been something “simpler” like the stomach flu or appendicitis. Finally, I took loads of tests like a colonoscopy, endoscopy, fibroscopy, MR Enterography and an ultrasound scan and my gastroenterologist broke the news to me that I had Crohn’s disease.

How did you feel when you received the diagnosis?

At first, I was just happy to finally put a name on this pathology that was making my life such a headache, but then I also felt angry and afraid. Even today, Even today, it’s hard for me to say that I’m going to have to live with the disease for the rest of my life, but I felt relieved that other members of my family aren’t affected and I know I have a good doctor and that the people in my life all support me.

Are you satisfied with the support you’ve received thus far?

Yes, I’ve gotten a lot of support from health care professionals following my diagnosis. The only thing is, no one has referred me for psychological support. They talked to me about some aspects of Crohn’s, but I’m still discovering more even today.

What do your treatments consist of?

I’ve been on Imuran for 11 months now and everything is going well for the moment…they haven’t discovered any stoma in my digestive tract.

How did your family react?

My family supported me, but I lost contact with a few people who were afraid of the illness, but I don’t hold it against them, because they understand it.

How are you now?

Since I began experiencing symptoms, I have to go to the toilet more often, I’m always hungry, I talk about what’s going on in my gut with those closest to me… and I sleep a lot! My plans for the next few years still aren’t very clear, but I’d love to work with young children as a teacher, and I’d also like to dedicate myself to advancing the cause of people affected with digestive disorders.

Any advice for people newly diagnosed with Crohn’s?

If someone thinks they might have Crohn’s, I’d tell them to get several tests done to make sure. To those who are newly diagnosed, I’d tell them to talk to the people who closest to them and ask for their support. And not to shut themselves away from everyone, because we’re never all alone in this. Join sites like Carenity where you can find lots of people willing to support you and also answer your questions. And especially to take life by the horns, don’t stay down even if you’re feeling down, have a good cry and get back up, with your head high and dance to Beyoncé!

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Personal Stories

School Exams

The very mention of exams can make even the calmest person feel stressed. Add to that the unnatural events of Covid 19 this year and this adds to the stress. Most of all it’s the current added difficulty of managing online learning and uncertainty of exam dates and formats.

We have so many unanswered questions. We need to stay positive and control what we can control and work to the best of our ability. We need to take it day by day and know that it’s ok to have good days and bad days. Make sure you and the exam students in your home open up to your friends and family, they will be feeling similar.

‘Fail to prepare and prepare to fail’. This statement is so true.

Some basic rules coming up to exam time

A quiet place to study – A suitable environment to study is important to help concentration levels.

A balanced diet – Good nutrition is essential at any time of year, but especially during exam time. Batch cook some healthy meals and stock up on nutritious snacks. Having some of the student’s favourite dinner to hand is important too.

Omega 3 is essential to fuel the hard-working brain at this time. Keep brain and vision in tip top shape by making sure to top up your good fats daily. Consider taking Cleanmarine® Krill Oil High Strength. It contains 590mg of concentrated, high strength Omega 3 Krill Oil. This concentrated formula of EPA, DHA, Astaxanthin and Choline provides the essential fatty acids required for the normal function of the heart, brain and vision. DHA contributes to the maintenance of normal brain function and vision, the beneficial effect is obtained with a daily intake of 250mg. Also eating 2 – 3 portions of oily fish a week will provides more essential fats for your body. Examples include salmon, mackerel and herring. Easy to cook in steam parcels in the oven with garlic, lemon and oil.

A good night’s sleep – Studying all night may seem like a good idea but if your child doesn’t get enough sleep, they are more likely to forget the information or under perform. When your mind is buzzing with exam questions, quotes and scientific theories, having something to help you switch off, relax and support deep sleep is a must. Try Melissa Dream™ which contains all-natural ingredients including the herbs lemon balm (Melissa officinalis) and Chamomile in combination with selected B-vitamins, Magnesium and the amino acid L-theanine. Magnesium contributes to a reduction of tiredness and fatigue while vitamins B6 and B12 contribute to the normal function of the nervous system. With no drowsiness or side effects the next day, Melissa Dream helps you to wake up rested and full of energy.

Exercise – Even a 20-minute walk will help your child to relax and destress their mind, this will also help oxygenate the entire body.

Stress is the biggest obstacle to overcome. It’s so important to get enough B vitamins in foods like broccoli. Kale, spinach. Getting your 5-a-day is bound to be the least of your worries as exam time approaches; ironically this is when your nutritional and energy needs are at their highest. Make sure you keep your nutrient and energy levels up with One Nutrition® Organic Power Greens. This is a unique combination of nature’s finest green foods including kale, broccoli, spirulina, wheat grass and barley grass juice powders in a handy capsule or powder to add to your morning smoothie.

Take time out to do something you love such as walking your dog, reading a magazine, chat online to your best friend. Journaling is also therapeutic, to put your thoughts and feelings onto paper. Try family time such as playing a board game to distract your mind from the books for a while.

Don’t forget to celebrate – when the exams are over, go out and celebrate together, hopefully everything will be back to normal by then.Lastest Posts

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Personal Stories

Let’s Talk Menopause with Lorraine Keane

“Honestly I never thought I was in the target market for anything to do with Menopause OR Perimenopause, until I asked to try Cleanmarine Menomin.

I have after all suffered with my hormones my whole life. Most recently irritability, tiredness, disturbed sleep, decreased sex drive – but I thought that was normal.  Aren’t we all busy, therefore tired?  It’s my ‘To Do’ list for tomorrow that keeps me awake and then of course the ‘lack of sleep’ will make you irritable and naturally less inclined to feel ‘romantic’.

Well now I know that it’s not ok to just put up with these symptoms, not when there is something out there that will help.  Since I started taking Cleanmarine MenoMin I am sleeping better and therefore I am less irritable and tired and just feeling better in myself and about myself.  It’s natural so you don’t have to worry about taking it long term.  I just wish I had discovered Cleanmarine MenoMin earlier.  For our health and wellbeing we should consider taking it from as early as 35.  I am so glad I’ll be ahead of the possy.

Menopause is inevitable but I know by balancing my hormones at this stage of my life, Cleanmarine MenoMin will only make the transition easier AND it has all the vitamins and Omega 3 oils I need to maintain a healthy body at the same time. It’s a win-win!”

– Lorraine Keane

About Cleanmarine MenoMin

The key active nutrients found in MenoMin have been carefully selected for their unique applications in hormone balance, skin health and energy production since these are the area in which most menopausal women need support.

– Omega 3 Krill Oil is a pure, sustainably sourced form of omega-3 oil similar to fish oil. Studies have revealed that the essential fatty acids (EPA and DHA) found in krill oil have a 59% better uptake in the body compared to fish oil making krill oil more easily absorbed and more effective than fish oil. This is why studies also show that krill oil has the same clinical benefits as fish oil for hormone balance and weight loss but at much smaller doses and it has not fishy repeat!

– Soy Isoflavones are natural plant substances that have a mild oestrogenic effect on oestrogen sensitive cells in the body. Supplementing with soy isoflavones is a great way to dampen down symptoms that are directly related to fluctuating or falling oestrogen levels such as hot flushes, memory lapses, mood swings and fatigue.

– B-vitamins are essential for energy production, metabolism and even help balance brain chemicals responsible for our mood. MenoMin contains B6 for hormone balance, B2 for energy production and skin health, B3 for health mucus membranes, B12 for the nervous system and folic acid for heart health.

– Vitamin D is an essential nutrient used by the body to regulate calcium absorption and bone maintenance. Regardless of whether you experience menopausal symptoms or not all menopausal women are at increased risk of osteoporosis making vitamin D a priority nutrients.

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Personal Stories

Crohn’s was ruining my life… but manuka honey has saved me

FOR years Rebecca Jenkins could not take a sip of water without running to the
loo.

Food also ran straight through her — and she had to dash to the ladies’ up to
ten times a day.

Humiliatingly, sometimes she could not reach a bathroom in time, and the fear
of horrible accidents made social situations a nightmare to be avoided.

This was the grim reality of her life with Crohn’s disease and no
treatments worked — until she found manuka honey.

Rebecca, now 34, began taking two daily teaspoons of the posh spread made by
bees fed on highly anti-bacterial nectar from the manuka plant. And within a
month, it appeared to have cured her.

Now she is looking forward to her wedding next week — wearing the white dress
she once would have been far too scared to even contemplate.

Rebecca — who weighed just 6½st and wore a tiny dress size four when she tried
the honey out of desperation — is still symptom-free 18 months later.

She said: “I was sick of feeling terrible. I lost so much weight I couldn’t
keep anything down. I’d regularly soil myself and have to carry extra
clothes in case I had an accident when I was out.

“I read that a footballer who had a similar condition to mine had used manuka
honey to ease his symptoms. But I didn’t have much hope.”

But within a week, the symptoms that had crippled her life had subsided.

She said: “I’d gone from spending my days sat on the loo and resting in bed to
having energy for the first time in years.

“My skin had cleared up, my periods returned and I felt normal again.”

Rebecca is one of 90,000 people in the UK with Crohn’s disease — a
debilitating inflammatory condition.

Rebecca Jenkins

According to Crohn’s And Colitis UK, the number of people being diagnosed or
hospitalised by the condition has soared in the past decade by as much as
300 per cent.

Freelance television executive Rebecca, from Long Stratton in Norfolk, first
showed symptoms in 2009.

She recalled: “I started getting intense stomach cramps and diarrhoea.

“I thought it was stress-related but when it didn’t go away, I knew there must
have been another reason.

“A week after symptoms started, I went to my doctor. He didn’t seem concerned
but things got worse.”

When Rebecca was referred to a specialist at the Norfolk and Norwich
University Hospital, she was spending so much time on the toilet she had to
turn down work.

She said: “My job is really physical and I spend a lot of time on my feet so
it was impossible to do it properly when I needed so much time in the
bathroom.

“I ended up losing thousands and thousands of pounds in wages.”

Stool samples did not show anything wrong with Rebecca but a further six
months of tests eventually showed that inflammatory markers in her blood
were sky-high, indicating Crohn’s.

She said: “Some of the tests were agony. Having tubes put down your throat and
up your bum wasn’t a nice experience at all.

“I had so much blood taken out of me I was surprised I had any left.But I was
desperate to know what was wrong with me.”

But the news she had Crohn’s disease came as a terrible shock. She said: “At
just 30 years old, it was devastating to be told I had this life-changing,
incurable illness.

“While I had faith in my doctors, I also knew there was little they could do
other than help me manage the symptoms.”

But Rebecca soon realised how things could be far worse.

She said: “I was lucky that I didn’t need any surgery to have my bowel removed
and get fitted with a colostomy bag like lots of other Crohn’s sufferers —
although I was warned this could happen in the future.”

Between courses of steroids, Rebecca was given various autoimmune medications
in a bid to stop her immune system attacking itself — but they had
horrendous side-effects.

She said: “Some made me feel like I was dying. Some gave me migraines, others
stomach ache, and I was once whisked to A&E because I got such bad joint
pain I couldn’t move.

“At my worst my mum would have to shower me after I’d soiled myself because
I was so weak.

“I always had to keep a spare pair of knickers on me. I couldn’t eat or drink
water without problems, or go out.

“I was desperate to find something to help me — and that’s when I read about
manuka honey.”

At her worst, Rebecca was spending a week in hospital every month. The rest of
the time she was in bed or on the loo.

But taking two teaspoons of manuka honey — bought from online supplier the
Honey Doctor — before breakfast each day helped straight away. She said: “My
bowel movements were far less regular, the pain was easing and I felt I
could cope for the first time in years.

“Whereas before I would always have to dash to the loo mid-meal, now I wasn’t
even having to go after a meal.” Her hospital consultant was also amazed.
She said: “He was over the moon for me, and told me to carry on doing
whatever was helping.

“Tests confirmed my suspicions — my digestive system was back to normal.

“Although I have the occasional flare-up, if I take an extra dose of manuka
honey in the evening the symptoms quickly subside.”

She said: “Now I can drive long distances without panicking, I can socialise
with friends, I’m not in pain and even have the occasional alcoholic drink.

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