Crohn’s disease is invisible and unless your living with it you just don’t know what it’s like, its that simple .
For some its taking medication to maintain their disease , keep on top of the inflammation that occurs in your bowel , maybe your getting a lot of lose bowel and cold sore and maybe your not sleeping very well and the lack of sleep is putting your body under stress and you get deflated and get colds and flu because with Crohn’s disease your immune system is always under attack so you are open to all kinds of affection.
For some Crohn’s disease suffers it’s been tired all the time or sore bones and there are many different types of supplement you can take to help with the symptoms of getting fatigued,any good doctor can take your blood and see in you need something to help you get back to your normal healthy you again.
So this invisible disease is different from everyone, but for some, it’s a daily nightmare, the colostomy bag , the ileostomy bag, and I could go on and on. Now I’m not saying that if you don’t have a colostomy bag that your not sick or that my life is harder than yours because anyone living with Crohn’s knows it is the most soul-destroying illness you could have and no one sees it but you , no crunch or walking stick invisible to everone.
But to have to use a colostomy bag ever day to discharge your poo can affect you in so many ways , boy do i miss sitting on the loo and pondering on my day and what I might do or plan for the weekend. Yes, I miss it a lot, why cos I don’t ponder any more I do the opposite because going out at the weekend is a job in itself don’t mind finding a nice place with a clean toilet with toilet paper , not does small toilets with the toilet paper so tight in the holder that its come out in little millimeter pices, I’m sure you have all been there with no bins, and god forbid if you drain your bag and it hits the seat, now you could kneel put most toilet floors or a little messy again I’m sure you have all been there. maybe your colostomy bag in a two-piece and not drainable, for those who have Crohns disease and do not have a colostomy bag it means that some bags can be drained at an opening so you can let your poo down the toilet and you can tidy up and be on your way or you might have a two-piece bag which means you remove the bag from its base blate and but on a nice clean bag and dispose of the old bag and throw it behind the toilet sistren why because there is no bin for you to use , see this is why I miss sitting on the loo.
The colostomy bag can fill at any time depending on what you eat and what time you eat and you can take some meds to slow down your movements like Imodium, I call them my socializing tablet and if you plan well ahead you can do your weekend out having fun and you might get away with changing while your out on the town with your invisible disease but that poo has to come out at some time maybe when your asleep and you wake up covered in a not so pleasant odor or worse you know what I talking about. Having a colostomy bag weakens the wall of your stomach and that when the hernia appears and this huge lump starts to mush its way out over your trousers and bulges trough your clothes like some sort of creature trying to get out and have a look and of course it can be very plane to see others to notice that there is something there, maybe we’re not invisible after all and maybe that the one time you wish you were, you can use hernia belts to hold in the buldge and camouflage the problem, you can use underwear that pulls up to your breast bone and keeps you tummy tucked it , sexy or what.
Changing your colostomy can be made easy if you make a plan , know were you going watch your diet leading up to going out our making a trip , visiting a friends house or you never know you just might meet the love of your life while out socializing on the town so plan for everything.
That’s the upside to having a colostomy bag , not looking good and feeling down about wearing a bag can make you feel ashamed and you get very low self-esteem, depression can slowly rais its head and add to the more complications to your condition so don’t allow that to happen and remember its ok to be sick and its ok to have a colostomy bag, always chat to someone about stress you are having, just to have someone to lesson can bring you self-esteem back.
Find the right clothes that make you feel good in your self , get a good diet that works for you and always be your own role model and get out there and live with or without a colostomy bag, we are Crohns disease worriers and we must advocate to all people living through this invisible disease that we have the control.chat soon padraig
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The very mention of exams can make even the calmest person feel stressed. Add to that the unnatural events of Covid 19 this year and this adds to the stress. Most of all it’s the current added difficulty of managing online learning and uncertainty of exam dates and formats.
We have so many unanswered questions. We need to stay positive and control what we can control and work to the best of our ability. We need to take it day by day and know that it’s ok to have good days and bad days. Make sure you and the exam students in your home open up to your friends and family, they will be feeling similar.
‘Fail to prepare and prepare to fail’. This statement is so true.
Some basic rules coming up to exam time
A quiet place to study – A suitable environment to study is important to help concentration levels.
A balanced diet – Good nutrition is essential at any time of year, but especially during exam time. Batch cook some healthy meals and stock up on nutritious snacks. Having some of the student’s favourite dinner to hand is important too.
Omega 3 is essential to fuel the hard-working brain at this time. Keep brain and vision in tip top shape by making sure to top up your good fats daily. Consider taking Cleanmarine® Krill Oil High Strength. It contains 590mg of concentrated, high strength Omega 3 Krill Oil. This concentrated formula of EPA, DHA, Astaxanthin and Choline provides the essential fatty acids required for the normal function of the heart, brain and vision. DHA contributes to the maintenance of normal brain function and vision, the beneﬁcial eﬀect is obtained with a daily intake of 250mg. Also eating 2 – 3 portions of oily fish a week will provides more essential fats for your body. Examples include salmon, mackerel and herring. Easy to cook in steam parcels in the oven with garlic, lemon and oil.
A good night’s sleep – Studying all night may seem like a good idea but if your child doesn’t get enough sleep, they are more likely to forget the information or under perform. When your mind is buzzing with exam questions, quotes and scientiﬁc theories, having something to help you switch oﬀ, relax and support deep sleep is a must. Try Melissa Dream™ which contains all-natural ingredients including the herbs lemon balm (Melissa oﬃcinalis) and Chamomile in combination with selected B-vitamins, Magnesium and the amino acid L-theanine. Magnesium contributes to a reduction of tiredness and fatigue while vitamins B6 and B12 contribute to the normal function of the nervous system. With no drowsiness or side eﬀects the next day, Melissa Dream helps you to wake up rested and full of energy.
Exercise – Even a 20-minute walk will help your child to relax and destress their mind, this will also help oxygenate the entire body.
Stress is the biggest obstacle to overcome. It’s so important to get enough B vitamins in foods like broccoli. Kale, spinach. Getting your 5-a-day is bound to be the least of your worries as exam time approaches; ironically this is when your nutritional and energy needs are at their highest. Make sure you keep your nutrient and energy levels up with One Nutrition® Organic Power Greens. This is a unique combination of nature’s ﬁnest green foods including kale, broccoli, spirulina, wheat grass and barley grass juice powders in a handy capsule or powder to add to your morning smoothie.
Take time out to do something you love such as walking your dog, reading a magazine, chat online to your best friend. Journaling is also therapeutic, to put your thoughts and feelings onto paper. Try family time such as playing a board game to distract your mind from the books for a while.
Don’t forget to celebrate – when the exams are over, go out and celebrate together, hopefully everything will be back to normal by then.Lastest Posts
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Crohn’s was ruining my life… but manuka honey has saved me
FOR years Rebecca Jenkins could not take a sip of water without running to the
Food also ran straight through her — and she had to dash to the ladies’ up to
ten times a day.
Humiliatingly, sometimes she could not reach a bathroom in time, and the fear
of horrible accidents made social situations a nightmare to be avoided.
This was the grim reality of her life with Crohn’s disease and no
treatments worked — until she found manuka honey.
Rebecca, now 34, began taking two daily teaspoons of the posh spread made by
bees fed on highly anti-bacterial nectar from the manuka plant. And within a
month, it appeared to have cured her.
Now she is looking forward to her wedding next week — wearing the white dress
she once would have been far too scared to even contemplate.
Rebecca — who weighed just 6½st and wore a tiny dress size four when she tried
the honey out of desperation — is still symptom-free 18 months later.
She said: “I was sick of feeling terrible. I lost so much weight I couldn’t
keep anything down. I’d regularly soil myself and have to carry extra
clothes in case I had an accident when I was out.
“I read that a footballer who had a similar condition to mine had used manuka
honey to ease his symptoms. But I didn’t have much hope.”
But within a week, the symptoms that had crippled her life had subsided.
She said: “I’d gone from spending my days sat on the loo and resting in bed to
having energy for the first time in years.
“My skin had cleared up, my periods returned and I felt normal again.”
Rebecca is one of 90,000 people in the UK with Crohn’s disease — a
debilitating inflammatory condition.
According to Crohn’s And Colitis UK, the number of people being diagnosed or
hospitalised by the condition has soared in the past decade by as much as
300 per cent.
Freelance television executive Rebecca, from Long Stratton in Norfolk, first
showed symptoms in 2009.
She recalled: “I started getting intense stomach cramps and diarrhoea.
“I thought it was stress-related but when it didn’t go away, I knew there must
have been another reason.
“A week after symptoms started, I went to my doctor. He didn’t seem concerned
but things got worse.”
When Rebecca was referred to a specialist at the Norfolk and Norwich
University Hospital, she was spending so much time on the toilet she had to
turn down work.
She said: “My job is really physical and I spend a lot of time on my feet so
it was impossible to do it properly when I needed so much time in the
“I ended up losing thousands and thousands of pounds in wages.”
Stool samples did not show anything wrong with Rebecca but a further six
months of tests eventually showed that inflammatory markers in her blood
were sky-high, indicating Crohn’s.
She said: “Some of the tests were agony. Having tubes put down your throat and
up your bum wasn’t a nice experience at all.
“I had so much blood taken out of me I was surprised I had any left.But I was
desperate to know what was wrong with me.”
But the news she had Crohn’s disease came as a terrible shock. She said: “At
just 30 years old, it was devastating to be told I had this life-changing,
“While I had faith in my doctors, I also knew there was little they could do
other than help me manage the symptoms.”
But Rebecca soon realised how things could be far worse.
She said: “I was lucky that I didn’t need any surgery to have my bowel removed
and get fitted with a colostomy bag like lots of other Crohn’s sufferers —
although I was warned this could happen in the future.”
Between courses of steroids, Rebecca was given various autoimmune medications
in a bid to stop her immune system attacking itself — but they had
She said: “Some made me feel like I was dying. Some gave me migraines, others
stomach ache, and I was once whisked to A&E because I got such bad joint
pain I couldn’t move.
“At my worst my mum would have to shower me after I’d soiled myself because
I was so weak.
“I always had to keep a spare pair of knickers on me. I couldn’t eat or drink
water without problems, or go out.
“I was desperate to find something to help me — and that’s when I read about
At her worst, Rebecca was spending a week in hospital every month. The rest of
the time she was in bed or on the loo.
But taking two teaspoons of manuka honey — bought from online supplier the
Honey Doctor — before breakfast each day helped straight away. She said: “My
bowel movements were far less regular, the pain was easing and I felt I
could cope for the first time in years.
“Whereas before I would always have to dash to the loo mid-meal, now I wasn’t
even having to go after a meal.” Her hospital consultant was also amazed.
She said: “He was over the moon for me, and told me to carry on doing
whatever was helping.
“Tests confirmed my suspicions — my digestive system was back to normal.
“Although I have the occasional flare-up, if I take an extra dose of manuka
honey in the evening the symptoms quickly subside.”
She said: “Now I can drive long distances without panicking, I can socialise
with friends, I’m not in pain and even have the occasional alcoholic drink.
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